Fetal Alcohol Spectrum Disorder Landing Pad

Fetal Alcohol Spectrum Disorder (FASD) refers to the range of neurological impairments that can affect a child who has been exposed to alcohol in the womb. A number of factors can influence the abilities and disabilities experienced by individuals exposed to alcohol in utero. Children with FASD can display symptoms of ADHD, autism, Asperger syndrome, Tourette's syndrome, epilepsy, intellectual disabilities, and various psychiatric disorders, but will often not respond to traditional treatments for those disabilities. FASD was formerly referred to as Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE). This landing pad highlights research, policies, and position statements (Why Do It?), print materials (Read All About It), videos and DVDs (See for Yourself), and web resources (Find It Online) related to FASD. Featured resources are high-quality, readily available, and no-cost. A special section (Virginia Guidance) features state-specific resources.

Why Do It?

Fetal Alcohol Spectrum Disorders (FASDs)

The Center for Disease Control’s website on FASD has several sections that highlight evidence-based practices. Go to the Research section for studies and findings related to FASDs. Visit the Intervention Strategies section to view recent scientific articles related to supporting young children with FASD and their families (e.g., an evidence-based social skills intervention for children with prenatal alcohol exposure in a community mental health setting).

http://www.cdc.gov/ncbddd/fasd/research.html (Research)

http://www.cdc.gov/ncbddd/fasd/research-intervention.html (Intervention Strategies)

Fetal Alcohol Syndrome Research Today

Summaries of the latest research about Fetal Alcohol Syndrome, including details on pregnancy, birth defects, causes, symptoms, and treatment, are provided in this free monthly online journal. http://fetalalcoholsyndrome.researchtoday.net

Responding to the Challenge of Early Intervention for Fetal Alcohol Spectrum Disorders

This article from Infants and Young Children reviews the latest research evidence, bearing in mind what is important to early intervention. The article also gives practical guidance on FASD prevention, methods for early screening, and referral of young children for diagnosis of FASD (and referral for needed services once diagnosed), and how to provide education, support, advocacy assistance, and anticipatory guidance for families raising children with FASD. http://depts.washington.edu/fasdpn/pdfs/olson2007.pdf

See For Yourself

Image of baby with Fetal Alcohol Spectrum Disorder

Photo Attribution - Wikipedia http://en.wikipedia.org/wiki/Fetal_alcohol_syndrome

Interventions Strategies for Infants and Toddlers with Fetal Alcohol Spectrum Disorder

Visit this website to access an excellent PowerPoint presentation on causes and effects of FASD, as well as a rich section of intervention strategies. http://faimh.org/resourceFiles/resourceFile_50.pdf

The Story of Ayal

This video tells the story of one family living with a child with FASD, emphasizing that family’s experiences, successes, and challenges. http://www.cdc.gov/ncbddd/fasd/multimedia.html

Find It Online

Family Empowerment Network (FEN): Supporting Families Affected by Fetal Alcohol Syndrome and Fetal Alcohol Effects

FEN is an international organization serving families and professionals. They provide free informational packets on FAS/FAE, an international resource/referral directory catalogued by state/province, a quarterly newsletter (The FEN Pen), extensive loan library (videos, audio training tapes, books, fact sheets, etc.), and professional development. http://pregnancyandalcohol.org/fen/

Fetal Alcohol Spectrum Disorder (FASD) Center

The FASD Center is a federal initiative devoted to preventing and treating FASD. Their website provides information and resources about FASD, including an excellent searchable database. They also provide materials you can use to raise awareness about FASD. Additionally, the Center is dedicated to providing training, technical assistance, and conference/event speakers. http://fascenter.samhsa.gov

Fetal Alcohol Spectrum Disorders (FASDs)

The Center for Disease Control’s website on FASD has loads of information on topics that range from diagnosis, data, and statistics to free materials (brochures, fact sheets, and training guides). http://www.cdc.gov/ncbddd/fasd/index.html

Fetal Alcohol Syndrome Family Resource Institute (FAS-FRI)

FAS-FRI is dedicated to the preservation of families through the identification, understanding and compassionate care of individuals disabled by prenatal alcohol exposure. The Institute offers a new parent information packet, has a reading list of articles and books, and collects information on physicians and researchers who treat/study FASD. http://www.fetalalcoholsyndrome.org

National Organization on Fetal Alcohol Syndrome (NOFAS)

NOFAS is an organization committed to raising public awareness of FASD and to developing and implementing innovative ideas in prevention, education, intervention, and advocacy. http://www.nofas.org

Read About It

Fetal Alcohol Spectrum Disorder

This website provides a collection of books and articles on FASD. http://specialchildren.about.com/od/gettingadiagnosis/g/fetalalcohol.htm

National Institute on Alcohol Abuse and Alcoholism (NIAAA)

The “Publications” section of the NIAAA website has resources for both family members and professionals. http://www.niaaa.nih.gov/PUBLICATIONS

Virginia Guidance

Fetal Alcohol Syndrome Fact Sheet

The Virginia Department of Health has developed a brief fact sheet to provide answers to common questions about fetal alcohol syndrome. http://www.vahealth.org/vnsp/documents/2009/birthdefects/English%20-%20PDF%20 %20For%20Web/Fetal%20Alcohol%20Syndrome.pdf

Virginia Association of Community Services Boards (VACSB)

On this site you can find information about the Community Services Boards (CSBs) and Behavior Health Authorities (BHAs) across the state that provide substance abuse services that may be helpful to parents. The CSBs/BHAs also provide an array of other supports, including mental health services and services for individuals with intellectual disabilities. http://www.vacsb.org

Virginia Early Intervention Professional Development Center

Virginia Commonwealth University
Partnership for People with Disabilities
www.eipd.vcu.edu

Integrated Training Collaborative
Infant and Toddler Connection of Virginia
Partnership for People with Disabilities

This professional development activity is supported by the Integrated Training Collaborative (ITC), with funding support from the Virginia Department of Behavioral Health and Developmental Services (DBHDS), American Recovery and Reinvestment Act (ARRA) Copyright © 2012, Updated 2013.