On May 1, 2021, Governor Northam proclaimed May as Early Intervention Awareness Month in Virginia. Many EI programs use this month to raise awareness and build relationships with referral sources, physician offices, other community programs, and of course, families. The video What is Early Intervention in Virginia? is often shared widely because it provides an overview explaining what EI is, what it looks like, and how it works. One of the things I love about this video is the opportunity to see and hear from families who have experienced EI. I think family stories are perhaps the most powerful “tools’ we have to build awareness of what EI has to offer. They can help us reach new families and invite them into partnerships with us. Family stories also remind us about why we do what we do. With that in mind, I’m going to share several videos you can use to spread the word about EI from the perspectives of families. If you have other videos you love too, please share the links by leaving a comment below. Here we go!

Reflections during the Final Visit (CO Dept of Education, runtime 5:46)

This video features a mother reflecting on her relationship with the physical therapist who visited her home to support her and her daughter. I think that perhaps, showing what happens at the end of EI, like you’ll hear and see in this video, can help open a doorway to the beginning of EI for another family.

Liam’s Story: A Mother’s Voice (VEIPD, runtime 5:15)

This video also features a mother telling the story of her family’s experience with EI. This story is a powerful reminder of the impact of this work on the daily lives and relationships of families. As an early interventionist, you never know what you might say or do that can have a lifelong impact. EI Awareness Month can be a nice reminder about that too.

Dream Big: A FIT Family Story (FIT FOCUS Video Library, runtime 5:27)

In this video, you’ll hear from a mother and father about how EI worked for them. They explain the emphasis on helping the family help the child. They also describe about how coaching helped them to use strategies in their home during the things they already do rather than adding extra things to do. They also share advice for families to “dream big for your child.” (Due to permission settings, you’ll need to click the “Watch on Vimeo” button below. This video is definitely worth the extra click.)

Parents and Early Intervention (EITP Illinois, runtime 7:59)

I featured this video in another recent post because it’s new. I think it’s worth mentioning again as another resource to share a family’s story. Even though this isn’t a family in VA, I think this family’s message is universal.

That’s just a few of the fantastic family story videos that are floating around the web. If you’d like to see more videos of families in EI, check out the Early Intervention Video Library and look for Families’ Experiences in EI in the menu. You might also find the Early Intervention – General page helpful for sharing info about EI with others.

So what are you doing to celebrate EI Awareness Month? What is your favorite EI family story video?

Share your thoughts, ideas, and video links in the comments below!

The post EI Awareness Month in VA – The Power of Family Stories appeared first on Early Intervention Strategies for Success.

You’ve worked really hard this year. You’ve stretched to fit into a mold of providing early intervention (EI) that was unlike any you’d ever experienced before. You struggled, you persisted, and you succeeded. You did it because you love what you do. You also did it because you love the families.

This new video, Parents and Early Intervention, from the Early Intervention Training Program at the University of Illinois is like a gift to all EI practitioners for the hard work you’ve done this year. It reminds us about the power of high quality intervention and how important our partnership with families can be. I know you know this, but it sure is nice to hear it from a family. Now, take 7:59 minutes to meet the Warren family and hear their story. I guarantee it’ll make your day.

See, doesn’t that do your heart good?

So yes, this may have been one of the most challenging years we’ve faced as a field, but when other businesses and services closed, EI did not. You continued to support families, reaching them virtually, checking on them by phone, and working together in ways that were new, different, creative, and inspiring. Now, as you reflect on this past year, ask yourself:

When you think of families you have supported, what do you hope they say about their EI experience?

Type your reflections in the comments below.

*Thank you to EITP and the Warren Family for sharing their story!*

For more videos featuring families’ experiences, visit the Families’ Experiences in EI page on the EI Video Library.

The post A Gift for You – New “Parents and Early Intervention” Video from EITP Illinois appeared first on Early Intervention Strategies for Success.

When talking to parents and caregivers, it can be helpful to ask them what they know about temperament and assess their understanding of how their temperament matches (or doesn’t match!) their child’s. Parents may be able to talk about their child’s response to different environments, sensory preferences or reaction to change and may not have thought about their own response. Parents and caregivers may not be able to recognize ways in which their own temperaments impact the behavior of their child.

What is Temperament?

Temperament is generally defined as consistent individual differences in behavior that are biologically based and are relatively independent of learning, system of values and attitudes. One key concept to remember is that temperament is biologically based, not made up of characteristics that are chosen. As such, an individual does not have the ability to change their temperament but rather use their knowledge to adapt to the environment. As an example, for individuals who become overwhelmed by noise, the volume of the television or radio could be turned down, voice tones can be adapted and strategies for calming in loud environments can be taught. Conflict can arise in the parent-child relationship when a parent perceives a child is acting in a particular way “on purpose” or “to make them (the parent) upset.” It is important to recognize that a child’s behavior is often a reflection of his or her temperament. Like many other developmental skills, parents need to be able to teach their children how to appropriately respond to their internal triggers.

Parent and caregiver understanding of how to support a child’s temperament style is crucial in the development of social-emotional skills. When parents can help children adapt to their environment and understand their own preferences, children will be better prepared to adapt to different environments using coping skills and resources available.

Having Conversations about the Parent’s Temperament

I often get questions about how to have conversations with parents and caregivers about temperament. Beginning by asking questions can be a good place to start. Helping parents to gain insight about their own temperament can help them to be more in tune with the actions of their child. Oftentimes, parents have insight into their child but may not have thought about their own preferences or strengths. Parents may not recognize the role that their temperament plays in the dynamic of the relationship with their child. Some questions that could be helpful to ask parents include:

• How do you manage your emotions?
• What are your sensory preferences (e.g. light, sound, etc.)?
• How do you respond to change?
• How do you communicate your wants and needs?

When parents and children have mismatched temperaments, strain in the parent-child relationship can be magnified. Parents may incorrectly attribute differences in interaction style to a child’s developmental delay, ascribing intent behind behavior or believing a child can simply change his or her temperament. Parents may not be aware of their own needs or have the capacity to understand how to adjust in order to have their needs met. When mismatched temperaments are not understood, parents may expect more of their child or believe that their child can change their behavior independently. This can lead to frustration and increased stress for parents. In addition, parents may feel as though they do not have the ability to meet their child’s needs or parent effectively. Children rely on their parents to be emotional co-regulators. This means that especially when children are young, they look to their parents to model how to manage uncomfortable emotions, changes to routine and internal triggers. When parents are calm, children can de-escalate more quickly. As children learn to understand their own temperaments, they can build their abilities to navigate different situations and interactions and become more effective in developing social-emotional regulation.

Talking about the Child’s Temperament

As providers, when parents talk about the ways in which they interact with their children, we can then begin to ask questions to help identify children’s temperament styles and explore which interventions are available to build family capacity. Once a parent can begin tuning in to the child’s unique temperament, the parent can then work to develop strategies for supporting the child’s needs. Here are some questions that you could help the parent to consider when trying to understand their child’s temperament:

• How does my child express their feelings?
• How does my child engage in play?
• How does my child respond when they experience discomfort?
• How does my child react to change?
• What does my child do when going through transitions?

When parents are in tune with their child’s temperament, they are able to support their child’s behavior more effectively. Parents can then understand their child’s needs to provide opportunities for learning new coping skills.

When children are young, it is important for parents to give a lot of support in helping their work through challenges. As children get older and can understand their own temperament style and what they need to be successful, the interactions become more balanced. When parents and caregivers are able to understand the ways in which temperament plays a role in the behavior and interactions of their children, stress is reduced and successful intervention strategies can be realized.

Now that you have some more tools to understand temperament, how can you help parents recognize and respond to their child’s unique characteristics?

Share your ideas by leaving a comment below!

For more information about this topic, check out Naomi’s 2-part webinar series on the VA Early Intervention Professional Development Center:

Foundations of Social Emotional Development: Temperament – Part II

Foundations of Social Emotional Development: Attachment – Part I

Also, be sure to visit the Social-Emotional Development topic page!

Naomi Grinney, LCSW has worked in early intervention for the past five years. Prior to working in EI, Naomi worked as a community-based mental health crisis response provider, as social worker in a psychiatric hospital and as a behavioral interventionist at a residential treatment center. Naomi is passionate about supporting the social emotional development of children and building family capacity and has worked with kids and families for twenty years. As the parent of a child who received Early Intervention services, Naomi brings a unique perspective to her role in providing tools and resources to empower parents in supporting their child’s development. Naomi can be reached at naomi.grinney@fairfaxcounty.gov. 

The post Temperament and Social Emotional Development appeared first on Early Intervention Strategies for Success.

Several years ago, I found that my EI caseload included a couple of families with stay-at-home dads. This was a first for me, and I found myself struggling to connect with family caregivers, which hadn’t happened to me since I was new to the field.  Both men were quite nice, but I stumbled when I tried to make conversation to build rapport.  What did I have in common with these men? With moms, I could build rapport around so many shared experiences being moms and women.   One dad was a former football player and the other was a fitness expert.  My idea of working out was to walk from the couch to the bookshelf. 

So, I did what I always do when I’m unsure- I read and researched.  I searched and searched for good information on working with dads.  I found almost nothing except for a few articles on how men and women communicate differently.  I had to muddle through mostly on my own, but we all made it through together.  These experiences helped shaped my later academic research. 

3 Key Strategies for Building Relationships with Dads

Here are some of the key strategies I used to build successful relationships with dads.

Talk side to side rather than face to face.

I can’t remember the source anymore, but the one tip I did garner from searching for books and articles was that men are socialized to talk with each other and others while they are engaged in a task or standing side by side, while woman are socialized to look at each other while talking. This strategy was immediately helpful! When the fitness expert dad offered to make me a fancy coffee, I took that opportunity of having his back to me to ask some deeper questions about what his hopes for his daughter were and what he wanted from EI.  It worked! This became part of our weekly routine.  He would make me a fancy coffee and I would use this time while he wasn’t looking at me to chat and build rapport.  With the other dad, I started positioning my body angled from him instead of looking directly at him.  This also worked immediately.  He opened up a little more when we weren’t looking directly at each other and I realized we could connect over our similar senses of humor.  He hasn’t been a client in years, but our relationship became strong enough that he sends updates on his son’s progress several times a year. 

Explicitly invite dads into therapeutic activities.

I learned to do this based on anecdotes from my own work in EI and the dads in my research verified it’s really important.  Many dads aren’t sure about what EI is supposed to be, especially if they aren’t the primary caregivers of their children. They hang back and watch or wait for their wife or partner to give them a summary of what happened.  Extend a direct invitation by saying, “Hey, we’re going to work on motor skills.  Come on over and help me make an obstacle course with the couch cushions” or “One of our outcomes that your kiddo can communicate her wants and needs.  Let’s take her in the kitchen and work on some strategies to get her communicating for snack time.” This signals that the dad is an important part of what’s happening and that you want him to participate. 

Be really clear about what you are doing and why.  Provide this information in writing, too.

Both the dads I worked with and the dads in my research wanted clear explanations of why their EI providers were giving them and their children specific tasks.  They wanted to know exactly how doing an obstacle course was related to motor development or how giving a choice of two items at snack time helped with communication development. For many of EI providers this information is so much a part of what we do, that we don’t think to explain the connection.  The dads in my research didn’t always feel comfortable asking providers these questions or they asked the questions but didn’t remember the answers after the provider left.  Make sure to provide written explanations that address the what and the why.  Remember, a quick text (if allowed by your program) counts as being in writing (just make sure you send it to mom AND dad).

Have you tried any of these strategies? Have one we haven’t thought of? Or maybe want some advice about a tricky situation with a dad?

Leave a comment and let us know!

For more information about working with dads, you can check out the Dads Matter! Webinar Series (external website) on the VA Early Intervention Professional Development Center (external website) site. Scroll down on the page to find both archived webinars.  

Megan has over a decade of experience working with fathers as an early intervention developmental specialist. Currently, she is an assistant professor at Salem State University, where she teaches future early interventionists and researches dads’ experiences working with early intervention programs. Megan lives in Salem, MA, with her husband, daughter, and two exceptionally naughty cats.

The post 3 Key Strategies for Building Relationships with Dads appeared first on Early Intervention Strategies for Success.

Technology is great when it works, right? It’s such an embedded part of most of our lives when we are not in the throws of a global pandemic that many of us hardly think about it. Now, though, when early interventionists are chin deep in trying to navigate tele-intervention, figuring out how to connect through technology is essential.

I’ve been picking the brains of amazing EI practitioners and local system managers to find out what they are doing to make the technology work, not only for themselves but also for the families they support. I’ve organized some of the great ideas I’ve heard into the list below.

A big THANK YOU to the practitioners and leaders from Fairfax, Norfolk, Prince William, Danville-Pittsylvania, Southside, Roanoke Valley, Rockbridge Area, Central VA, Cumberland Mountain, Middle Peninsula-Northern Neck and others who shared their experiences with me!

7 Technology Tips

Here are 7 tips for managing technology when preparing for or providing tele-intervention:

1. Prepare yourself first – Before you contact the parent, make sure you have an understanding of what tele-intervention is. Watch the TelePractice in Early Intervention webinar for a fantastic overview and tons of strategies. Watch a video such as A Home Visit with Zander, Providing Early Intervention Services through Distance Technology, or Tele-Intervention – Coaching during Family Chore-Laundry to see how coaching works during tele-intervention. Educate yourself about the technology so you can answer parents’ questions as best you can. Larry Edelman has prepared a great resource document about technology: Planning for the Use of Video Conferencing for Early Intervention Home Visits during the COVID-19 Pandemic (PDF, New Window)– check it out!

2. Touch base the “usual way” – Reach out to the parent using your typical means of communication – phone, email, or text, depending on what’s permitted in your program or preferred by the family. Check in about the family’s welfare first, then ease the conversation into virtual options for connecting.

3. Explore and explain options – Without making any assumptions about family preferences or capability, explore the available options for video visits or phone contacts for service delivery. Explain how each option could work and paint a picture of what it might look like. If the parent is interested (or even unsure), share a link to the video, A Home Visit with Zander, so he/she can watch a visit and hear from a parent about how tele-intervention can work. Be sure to invite the parent to ask questions, share any worries, and think through the possibilities with you.

4. Share your vulnerability – It’s okay to let the parent know that this is new for you too. Assure the parent that you will figure it out together and that, if the parent chooses the high tech option (aka video confererencing) and something goes wonky, you always have a low tech option as Plan B (aka phonecall).

5. Schedule a tech check – Before the actual video visit, schedule a 15 minute tech check. This may be a non-billable activity, but it’s worth it. Send the parent the video conferencing link with detailed instructions about how to connect. Get online together, check video, audio, lighting, etc. and talk about where the device will be positioned so you can see the family the best. Plan together for what the parent wants to do during the actual visit and how the technology can be used so you can observe and collaborate. If you or the parent has tech problems, remember the #1 rule of thumb with troubleshooting: when in doubt, back out and try again. Log out of the video conference and try to log back in. If that doesn’t work, log out and restart the computer. If that still doesn’t work, try another browser. Persistence will pay off, I promise.

6. Problem-solve Wifi issues – Here’s where practitioners are getting creative. I’ve heard of folks parking in the family’s driveway for the video visit so the family can access the practitioner’s hotspot, then holding the visit using technology with the practitioner parked outside. What an idea! Some schools are offering hotspots for older children – can the family use that connection for the visit? If there are limitations on data or bandwidth, schedule the visit at a time when issues should (hopefully) be at a minimum, like in the afternoon after older children are finished with online learning.

7. Let the parent decide – If a parent is unsure about either option, encourage him/her to try a phone or video visit then evaluate how it went. If the parent declines, that’s okay. Parents can put their services on hold at any time; just be sure that they fully understand their options, privacy, and the support you can provide. Be sure to document your discussion and check back in with the family often in case they change their minds.

Once everything is in place and your fingers are firmly crossed, schedule that first visit and go for it. Take a deep breath before you connect with the parent and enter the video call with confidence. Expect some hiccups, be flexible, practice your patience, and exercise your sense of humor. This will get easier and both you and the family will adjust, together.

You’ve got this.

What strategies are you using to prepare families for tele-intervention?

What creative ideas are you using to help families manage technology needs?

Let’s hear your best ideas! Share them in the chat and let’s continue to support one another. J

For more information, videos, webinars, and online training related to tele-intervention, visit these sites:

COVID-19 and EI Tele-Intervention Updates – VA EI Professional Development Center

Coronavirus Disease (COVID-19) – ECTA Center

The post 7 Technology Tips for Tele-Intervention appeared first on Early Intervention Strategies for Success.

We are at the end of our discussion on the levels of awareness of parent of young children with disabilities. We have explored the ostrich phase – a time when a parent has a lack of awareness about disabilities and may not recognize the characteristics of a disability displayed by his or her child. Additionally, we have examined the phase of special designation – the stage at which parents have, through some transformational experience, recognized that their child indeed has a disability, and will require some additional assistance from a service provider to maximize his or her personal potential. Last month, we reviewed the normalization phase when a parent minimizes differences between the child and his or her typically developing classmates and siblings.

Fourth Level of Awareness: Self-Actualization

Today, we are going to explore a parent’s fourth and final level of awareness – Self-Actualization. In this level of awareness, a parent fully recognizes that his or her child with disabilities need supports. Not only does a parent at this level recognize the need for support, but by this time in a parent’s journey, based on the experience of raising and loving the child, the parent has his or her own perspectives on how these needs should be met.

During the time of parenting their child with disabilities, the parent has developed an expertise on a subject – his or her child.

Parents of children with disabilities have been described as practical scientists, and co-therapists, who take an active role in educating and raising their children while becoming skilled at selecting appropriate interventions. Parents may not have the fancy words that you as an early intervention professional have based on your knowledge of the content. However, they are doing some of the same things that you are doing in your practice at home. The interventions just look a little differently.

A self-actualized parent is ready to exercise his or her role as your partner in moving the child’s growth and development forward. And at this point of development, the parent is incapable of being a silent parent. The self-actualized parent is vocal and active. At times, the strong opinion and confidence that develop during and after the self-actualization phase can be met with a bit of resistance from service providers. However, this new found parental authority, when discussing the needs of the child, should be met with a listening ear and an open heart. The parent is now fully capable of exercising and expressing expertise regarding who his or her child is and what the child needs.

The Magic is About to Happen!

As early interventionists, you are in a help-giving profession. Thus, you want to ensure that you are offering families help that is relevant to the family’s needs

How can you achieve that goal?

By listening to your partner – the parent.

The phase of self-actualization is a reflective space. The parent has had the opportunity to think about the child, think about his or her parenting, think about what he or she feels will be the best way forward for the child and family. The self-actualized parent is ready and fully expects to be your partner.

However, this partnership will require a respectful reciprocal relationship between you and the parent.

True Partnerships are Comprised of Two Equals

You can’t be in partnership if, as the service provider, you walk into the relationship and take the lead. That’s not a partnership. The parent is asked to follow your lead in that situation. However, if the relationship is approached with the understanding that you are the expert on the professional knowledge and the parent is the expert on the child and how the disability manifests itself in the child, you can begin to respect and acknowledge the parent as a true partner.

Also, it is critical to remember that, as early interventionists, the goal is to improve children’s outcome. Therefore, you want to empower and enable parents, because no matter how great of a service provider you are or how much you love a child, your time with that child will expire. Parents and caregivers are forever. So, take this time to strengthen your partner.

Therefore, instead of striving to have a parent say you were best service provider the child ever had, you want a parent to say, “While working Ms. Angela, I learned strategies that I use with Molly to this day.”

That self-actualized parent is primed to receive the knowledge you have to give. However, self-actualized parents require and expect that you recognize and accept the knowledge and input they have to offer, as well.

This Child is Their LIFE!

These parents have now fully owned their role as parents of a child with disabilities. They are no longer in a state of not knowing. They are no longer looking for someone to “fix” their child. They are no longer comparing their child to other children.

They just see their most precious child – uniquely different, but not less than.

Unfortunately, as professionals who works with young children and their families, you may not witness a parent move through all of these levels of awareness during your time with a family. However, you must trust the process, not rush the process. And remember a parent’s time of being a parent is 22 years +. And just like the children you serve, parents too take time to develop.

When you commit the time to truly partnering with a parent and assist in that parent’s development as a parent of a child with disabilities, your legacy lives on in that family forever. You become the gift that keeps on giving.

So, be the gift that keeps on giving! We’re counting on YOU!

Have you had the opportunity to partner with a parent who you believed reach the self-actualization phase of awareness?

How did that experience compare to partnering with parent in the ostrich, special designation, or normalization phases?

Check out El’s archived webinar: Mama Bear: Using Parent Narratives and Experience to Improve Engagement Practices

Be sure to read the other posts in this series:

Emerging Parenthood: Trust the Process – Don’t Rush the Process

Levels of Awareness: The Ostrich Phase

Special Designation: The Parent’s Aha Moment

Normalization – The Hope Phase

El is an educator, entrepreneur, author, and PhD candidate specializing in Early Childhood Education/Early Childhood Special Education at George Mason University. Prior to leaving the traditional classroom, El served as an Elementary and Early Childhood Educator in the United States, Japan, and South Korea. She is the founder of KinderJam, an Early Childhood Education care, enrichment, and training agency. Above all, El is the proud mother of an 11-year-old son on the autism spectrum, affectionately known as SuperDuperKid (SDK). El can be reached at elbrown@kinderjam.com.

The post Self-Actualization: Hello, I am the Parent of a Child with Disabilities appeared first on Early Intervention Strategies for Success.

Drew Dudley believes every person has changed someone’s life not by doing something extraordinary but rather through the everyday simple actions of being a leader. These actions can be so small a person may not even recall it in his or her memory. Mr. Dudley presents this inspiring Ted Talk on everyday leadership.

Take 6 minutes to hear his story:

“We have made leadership something bigger than us.”

Drew Dudley is right. If we relate leadership to only changing the world, maybe we need to redefine it. Drew Dudley worries “sometimes we spend so much time celebrating amazing things that hardly anybody can do, that we’ve convinced ourselves those are the only things worth celebrating.” The truth is there are moments that occur every day that define you as a true leader. Awareness and intention to understand the power of our own light can help us recognize what Mr. Dudley calls “lollipop moments.” Those moments are what makes us leaders.

“A lollipop moment is a moment someone said something and did something that made your life fundamentally better.”

Take a moment to pause and reflect on this statement. Who has impacted your life by simply saying or doing something? How have you impacted others?

It’s possible we do not always realize the power of our own words and actions in everyday moments. One day, I remember I was leaving the soccer field. A mother approached me and asked if I remembered her. She looked very familiar and then I recalled working with the family in early intervention. This mother gave me an update on her child and thanked me for supporting them. She told me she often thinks of the impact I made on them by providing the foundation for her, her husband and grandparents to help her son continue to grow in his journey. Wow! I was speechless. I did not realize the power of my influence on this family.

These are moments we have all experienced and never realized it……..a lollipop moment. This mother just found an opportunity to thank me for it.

Drew Dudley challenges us to “redefine leadership about lollipop moments. How many we create? How many we acknowledge? How many of them we pay forward? How many we say thank you for?” I am accepting this challenge and will remain aware of the opportunities to create lollipop moments with families. I will acknowledge the power I hold as a leader. I will model characteristics of a great leader daily during my visits and when working with my team members. I will thank others when they say or do something that impacts change in my life.

Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness that frightens us. -Marianne Williamson

Please feel free to share your own lollipop moment when someone has impacted your life or thanked you for impacting their life.

What were your first thoughts after watching this video?

The post Everyday Leadership: Redefining Leadership in Lollipop Moments appeared first on Early Intervention Strategies for Success.

We are nearing the end of our discussion on the levels of awareness of parents of young children with disabilities. We have explored the ostrich phase – a time when a parent has a lack of awareness about disabilities and may not recognize the characteristics of a disability displayed by their child. Additionally, we have examined the phase of special designation – the stage at which parents have, through some transformational experience, recognized that their child indeed has a disability, and will require some additional assistance form a service provider to maximize their personal potential.

Third Level of Awareness: Normalization

Today, we are going to explore and discuss a parent’s third level of awareness – Normalization. As the extremely proud mother of a pre-teen on the autism spectrum, who amazes me daily, I think of normalization as the “Hope Phase.” In this third phase of awareness, the parents minimize differences between their child and his or her typically developing classmates and siblings. They emphasize the need for normalization in their child’s life so that it begins to look like that of other children their age.

At first glance, the normalization phase may look like a step backward, given the fact that the parent fought for special services and accommodation during the previous stage, special designation. However, this attempt to “normalize” the child is simply a part of the process.

Imagine this.

A family is blessed with a child with disabilities. Then, the parents must face all that they don’t understand about their child’s disability and how to raise and care for a child with additional needs. Then, the parents must accept and recognize they need help in providing their child all that he needs to maximize his personal potential. Finally, they realize that having a child with a disability is not a short-term episode. Instead, this is their life, their new normal.

That’s a lot to process.

How does one begin to merge the values, beliefs, hopes and dreams of their family’s “old normal” with their family’s “new normal” of loving, raising, and caring for a child with disabilities?

Trust me. It takes a lot of faith and hope.

Faith and hope that one day your family will again achieve homeostasis and some semblance of smooth sailing or normalcy.

A Parent’s Theory of Hope

After living in the triage and fight modes indicative of the ostrich phase and special designation, things are beginning to calm down during the normalization phase. The parent is beginning to find her rhythm. She is beginning to visualize her version of the future for her child. She is beginning to think, “My child and our family just might be okay.” Therefore, in her mind hope develops – hope for her child and hope for her child’s future.

Now, she must have the faith to test her theory of hope.

The clearest example of this stage of hope was detailed to me during a discussion with service providers at one of my workshops in Atlanta, GA.

The preschool team and parents had worked together with a four-year-old who required some assistance to walk. The preschooler got a walker and had confidently learned how to maneuver about the school with her walker. However, for preschool graduation, her mom was adamant that her child was not to use the walker to walk across the stage. Instead, she wanted her daughter to walk across the stage with the assistance of a teacher.

The preschool team pushed back.

But the mom didn’t budge.

The preschool team saw this as denial.

But this was actually normalization.

One the greatest motivators of parents of young children with disabilities is hope. In that moment, that mother may have needed to see her child walk across the preschool stage with assistance, but without the walker, to envision her child walking across the stage for graduation from high school or college. Regardless of if you see the goal or hope as unrealistic, don’t squelch hope. That hope will power a parent forward long after your time with that family has expired.

How Can You Help?

If parents don’t have the faith to test hope, how can we expect them to keep working with their child to assist their child in maximizing his or her personal potential?

If parents don’t believe gaps can be minimized, what is there to motivate a parent to continue to advocate for inclusion and opportunities for his or her child with disabilities?

During the normalization phase, parents are strengthening their advocacy and cheerleading voices for their child and their families. You can help with this. How? Simply give a parent a small win that will offer huge motivation. If, as a team, you try it and it doesn’t work yet, at least you have shown the parents that you listened to their hopes for the child and you support and encourage the family and their goals for the child’s future.

I cannot say it enough. Hope is the single greatest motivator for a parent’s continued work with his or her child with disabilities. Hope gets us up in the morning. Hope propels us to try new things with our children. While “normalization” is the word that is used, my interpretation of this phase is the onset of hope for quality of life and well-being for my child with disabilities in a world where he is in a marginalized population. And because of my faith to test my hope, my child AMAZES me daily!

Have you ever encountered parents who had, what you would consider, unrealistic developmental goals for their child with disabilities?

Given the new information you have about the normalization phase, how would give that parent reliable information about the characteristics of the child’s disability while nurturing parental hope?

Check out El’s archived webinar: Mama Bear: Using Parent Narratives and Experience to Improve Engagement Practices

Be sure to read the other posts in this series:

Emerging Parenthood: Trust the Process – Don’t Rush the Process

Levels of Awareness: The Ostrich Phase

Special Designation: The Parent’s Aha Moment

Self-Actualization: Hello, I am the Parent of a Child with Disabilities

El is an educator, entrepreneur, author, and PhD candidate specializing in Early Childhood Education/Early Childhood Special Education at George Mason University. Prior to leaving the traditional classroom, El served as an Elementary and Early Childhood Educator in the United States, Japan, and South Korea. She is the founder of KinderJam, an Early Childhood Education care, enrichment, and training agency. Above all, El is the proud mother of an 11-year-old son on the autism spectrum, affectionately known as SuperDuperKid (SDK). El can be reached at elbrown@kinderjam.com.

The post Normalization – The Hope Phase appeared first on Early Intervention Strategies for Success.

Transition is a hefty topic here in Virginia, and I bet it’s probably a hefty topic in other states as well. Transition, and all of the requirements that go along with it, can be overwhelming to all members of the IFSP team. In VA, we often hear from service coordinators that transition is hard – hard to remember all of the steps involved, hard to complete the documentation accurately, hard to manage timelines, and hard to collaborate with receiving programs. For service providers (and service coordinators too), it can be hard to let families go. For families, transition can be a scary time of moving from the known to the unknown and learning to trust someone new with their child. Despite the challenges, we hope that in the end, transition is smooth and results in children and families moving to the next environment where they will be supported and successful.

That all sounds great, but how do you do it? What does smooth and successful transition look like?

A Flexible and Focused Journey

Answering those questions is tricky because transition should be an individualized process. It should be flexible but focused, with the journey being as important as the destination. We often think of transition as the journey from Part C early intervention (EI) to Part B early childhood special education preschool services. The DEC Recommended Practices on transition remind us to think more broadly. Transition in EI includes any change in environment, such as a preemie’s move from the NICU to home or a two year old’s move from home-based EI services to classroom-based preschool under Part B, Early Head Start, a local church preschool, or child care center.

DEC Recommended Practices: Transition

Transition often represents a big change for the family, so what we, as EI practitioners, do before, during, and after that change really matters. Let’s consider the two recommended practices and how what you do impacts what successful transition looks like.

TR1. Practitioners in sending and receiving programs exchange information before, during, and after transition about practices most likely to support the child’s successful adjustment and positive outcomes.

As we see in this practice, it matters what we do before, during, and after the journey:

Before transition: Exchanging information when preparing for transition might look like a service coordinator sharing the IFSP and evaluation information with the receiving program (with parent permission) at the point of referral. It might look like the parent sharing a homemade booklet about her child with the IEP team so they can learn who her child really is. 

During transition: Imagine the speech therapist from the EI program talking with the receiving preschool teacher about how best to support the child’s communication starting the first day of school. Or, the EI physical therapist (PT) working closely with the receiving program’s PT to ensure the new program has the appropriate equipment so the child has the stability he needs to participate in group activities. 

After transition: Even though the child will be discharged from the EI program just before transition, wouldn’t it be great if the receiving program staff could still reach out to the EI practitioners with questions about how to help the child adjust to the new environment? Similarly, the EI staff could reach out to the family to check in on the child’s adjustment and offer support, even just over the phone. Staying in touch, even though the child is no longer receiving EI services, would be a wonderful way to facilitate that seamless transition. 

TR2. Practitioners use a variety of planned and timely strategies with the child and family before, during, and after the transition to support successful adjustment and positive outcomes for both the child and family.

Implementing this practice reminds us that transition should be well-planned and coordinated. For a service coordinator, this might look like closely monitoring required timelines for Part B referral, which in Virginia includes referring children by April 1st (or earlier in some localities) to ensure that eligible children start preschool the first day of the next school year. Service coordinators also ensure that transition planning occurs at least 90 days but not more than 9 months prior to the anticipated date of transition. Transition conferences are held so families can learn about their options and plan accordingly.

During the transition process, the service coordinator and other providers can help families prepare and provide needed information to the receiving programs (such as proof of residency). They may attend eligibility or IEP meetings with families for support. Service coordinators and providers can check in regularly with families about the process, answer questions, and link families with other parents who have been through the process. 

Providers can help children and families prepare for the new environment by working together on outcomes to help the child be successful. Examples of this could include teaching the child to use an AAC device to communicate more clearly with others, helping the child learn to use a gait trainer to maneuver around obstacles in a busy setting, assisting the parent in finding opportunities for the child to learn to play near other children, or encouraging the family to teach the child to hang up a jacket, carry his backpack, or help clean up after lunch. 

What transition looks like and how the journey unfolds will be different for each child and family. What we do, as EI practitioners, before, during, and after transition can help make sure the process is a positive one that prepares children (and their parents) to be successful wherever they go next.

What is one of the most important things you can do to help families prepare for transition?

How do you support families during and after transition? 

Share how you implement the transition practices in the comments below!

To read more about how to implement other DEC Recommended Practices, be sure to check out the rest of this series by searching for “DEC Recommended Practices” using the search feature at the top of the page.

The post DEC Recommended Practices: Transition appeared first on Early Intervention Strategies for Success.

In our previous discussion about the levels of awareness for parents of young children with disabilities, we explored the ostrich phase – a time when a parent has a lack of awareness about disabilities and may not recognize the characteristics of a disability displayed by their child.

Today, we are going to explore and discuss a parent’s second level of awareness – Special Designation. As a parent of a child with disabilities, I like to think of Special Designation as the “Aha Phase.” In this second stage of awareness, parents have, through some transformational experience, recognized that their child indeed has a disability and will require additional assistance from a service provider to maximize his or her personal potential. This transformational experience may come in the form of a quiet realization. Or, a question is asked by a teacher, trusted friend, or family member, such as, “Johnny isn’t talking yet. What do you think about that?”

During this phase, the parent may begin seeking guidance from service providers. “Sally is not walking yet and she is almost two. Her sister started walking before she was one. I’m worried. What should I do?” The parent’s rationale during Special Designation is if there is a “problem” with my child’s development, then surely there are professionals who can fix this problem. At this time in the parent’s journey, the parent is looking for support from a more knowledgeable other in the area of disabilities.

That more knowledgeable other is you.

My Experience in Special Designation

Let me share with you my own experience in Special Designation as a new parent of a child with disabilities.

In 2008, I found myself home alone with my 17-month son. My husband was deployed to Iraq and I busied myself caring for our son in his absence. Early during the deployment, I had experienced what would be my third and final miscarriage. After the miscarriage, I chose to stay home with my baby and try to process the sorrow I was feeling. Therefore, I didn’t engage with friends and neighbors for playdates and outings. My son and I had always been extremely social. Since he was four weeks old, we attended Parent and Me classes, enjoyed daily outings with friends, and went on weekend excursions with Dad. Language was all around us. People were always talking. I was always talking. I was always narrating for him. So, in my mind, he was talking, too. We had an intuitive language, Therefore, without realizing it, I compensated for the words my son never spoke.

However, with the absence of people and talking around us, I began to notice something that I had not fully acknowledged before. My son wasn’t talking. If I wasn’t talking, there was complete silence. There was absolutely no conversation in the house. None at all. I talked, and my baby listened, at least I thought he was listening. But I knew for certain, he wasn’t making any attempts to speak to me. This was my single greatest “Aha” moment as a parent of child with disabilities and the catalyst for action.

Unsure of what to do or how I felt about my son’s lack of language, I made an appointment with my son’s pediatrician. When I took him to the doctor, I said, “My son’s not speaking. He has a couple of words that he says, like ‘hi,’ ‘bye,’ and ‘touchdown,’ but he’s not making any attempts to communicate with me.” The pediatrician examined my son—healthy eyes, ears, and heart. The pediatrician then said to me, “Children develop at different rates. Just keep doing what you’re doing, mom—you’re doing a great job.” Then he gave us a sticker.

I was devastated. Do you know how much strength it took for me to make that appointment, ask for help, and say out loud to someone that I think there is something going on with my child that I don’t know how to fix?

A lot.

Fortunately, I had the skill set and agency to advocate for my son and his needs immediately and I didn’t stop until I found service providers who could best support my child and his needs.

What You Can Do

However, parents come to service providers from different pathways. It is essential as service providers take the time to listen to parents so that every parent has the opportunity to share the details of their concerns. And while a disability cannot be “fixed”, you can assure parents that you are here to walk with them through this journey and together you, with the family’s input, will figure out a way forward.

Special Designation is a step forward as the parent is actively looking for help. Consequently, this phase requires patience and a listening ear from service providers as the parent processes the realization that their most precious child has a disability. Special Designation is a turning point that parents reach before the family begins to establish their “new normal” as a family of a child with disabilities.

As an early interventionist, you are in an opportune position to work with parents during the Special Designation phase as you empower and equip parents with useful skills and strategies that will enable them to best assist the continued development of their young child with disabilities.

Have you ever encountered a parent who had the expectation for you to “fix” their child?

Given the new knowledge you have about Special Designation, how would you respond to that parent now?

Be sure to read the other posts in this series:

Emerging Parenthood: Trust the Process – Don’t Rush the Process

Levels of Awareness: The Ostrich Phase

Normalization – The Hope Phase

Self-Actualization: Hello, I am the Parent of a Child with Disabilities

Check out El’s archived webinar too: Mama Bear: Using Parent Narratives and Experience to Improve Engagement Practices

El is an educator, entrepreneur, author, and PhD student specializing in Early Childhood Education/Early Childhood Special Education at George Mason University. Prior to leaving the traditional classroom, El served as an Elementary and Early Childhood Educator in the United States, Japan, and South Korea. She is the founder of KinderJam, an Early Childhood Education care, enrichment, and training agency. Above all, El is the proud mother of an 11-year-old son on the autism spectrum, affectionately known as SuperDuperKid (SDK). El can be reached at elbrown@kinderjam.com

The post Special Designation: A Parent’s Aha Moment appeared first on Early Intervention Strategies for Success.