Deaf and Hard of Hearing Landing Pad

1 to 4 of every 1000 babies born in the U.S. has some form of hearing loss. Hearing is critical to speech and language development, communication, learning, and social development. For this reason, it is crucial to identify high quality, evidence-based resources for administrators, practitioners, and families. This landing pad highlights identification and treatment guidelines and research-based position statements (Why Do It?), video-based information (See for Yourself), Web resources (Find It Online), and useful books (Read All About It) to support those efforts. Featured resources are high-quality, readily available, and no-cost or low-cost. A special section (Virginia Guidance) features Web sites, organizations, and other state specific resources.

Why Do It?
American Speech and Hearing AssociaOon (ASHA) Resource Guide for EducaOonal and Pediatric Audiologists. Particularly ASHA (2008). Guidelines for Audiologists Providing Informational and Adjustment Counseling to Families of Infants and Young Children with Hearing Loss Birth to 5 Years of Age.
ASHA Early Hearing DetecOon and IntervenOon (EHDI) Action Center
American Academy of Audiology (AAA) Guidelines, including those on Infant Identification, Pediatric Diagnostics, and Pediatric Rehabilitation & Hearing Aids;120/4/898
American Academy of Pediatrics Position Statement (2007): Principles and Guidelines for Early Hearing Detection and Intervention Programs Joint Committee on Infant Hearing.

See For Yourself
Answers parent quesOons about what to do if they think their child has a hearing loss, or if they are newly diagnosed with hearing loss.
Videos from John Tracy Clinic (JTC). JTC provides, worldwide and without charge, parent‐centered services to young children with a hearing loss offering families hope, guidance and encouragement. (also in Spanish).
“Travel Inside the Ear”
Mission to promote and provide equal access to communicaOon and learning for students who are blind, visually impaired, deaf, hard of hearing, or deaf‐blind. The DCMP media library has over 4,000 free‐loan described and captioned media titles available to registered Level 2 members (students, parents and teachers), and our members can watch media online or order a DVD copy to be shipped to them. (also in Spanish)

Videos from NIDCD:
“Why? Stories about Cochlear Implants”

Videos from

Find It Online Part 1
Boys Town National Research Hospital ‐‐ created to answer parents' questions about infant hearing screening and follow up testing. (also in Spanish)
American Society for Deaf Children – advocacy and parent education.
John Tracy Clinic provides, worldwide and without charge, parent‐centered services to young children with a hearing loss offering families hope, guidance and encouragement. (also in Spanish).
Hands and Voices is a nationwide non‐profit organization dedicated to supporting families and their children who are deaf or hard of hearing, as well as the professionals who serve them. We are a parent-driven, parent/professional collaborative group that is unbiased towards communication modes and methods.
Information on raising a deaf or hard‐of-hearing child (also in Spanish)
Centers for Disease Control and Prevention (CDC) – information on hearing loss in children. (also in Spanish)
National Dissemination Center for Children with Disabilities (NICHCY) ‐‐ Central source of information on childhood disabilities. (also in Spanish)
Alexander Graham Bell Association ‐‐ helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. (some resources available in Spanish)

Find It Online Part 2
National Deaf Education Network Clearinghouse, Gallaudet University. Info to Go for parents.

International non‐profit ‐‐ world's largest web site on hearing and hearing loss (also in Spanish)
U.S. Department of EducaOon. (2007). provides background on early intervention, the use of technology and other support available to children and their families. (also in Spanish)
National Center for Hearing Assessment and Management (NCHAM) is the national resource center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems.
Marion Downs Hearing Center
Helpful information on hearing and balance from the American Academy of Audiology
National Institute on Deafness and Other Communication Disorders. (also in Spanish)
Centers for Disease Control and PrevenOon (CDC) – information on hearing loss in children. (also in Spanish)

Read About It

The Book of Choice. Seaver, L. (editor, 2011 ‐‐ available through the Hands and Voices website ) “...parents sharing directly with other parents of children who are deaf or hard of hearing bring an essential kind of hope, inspiration and empowerment. This book is an amazing resource that captures that unique quality, and opens our minds to broader, more holistic views of parenting a child with hearing loss…”

Raising and Educating a Deaf Child: A Comprehensive Guide to the Choices, Controversies, and Decisions Faced by Parents and Educators (Second Edition). Marschark, M. (2009): “…a guide through the conflicting suggestions and programs for raising deaf children, as well as the likely implications of taking one direction or the other. Covers topics ranging from what it means to be deaf to the many ways that the environments of home and school can influence a deaf child's chances for success in academic and social circles. The 2nd edition provides expanded coverage of cochlear implants, spoken language, mental health, and educational issues relating to deaf children enrolled in integrated and separate settings…”

Choices in Deafness (Third Edition). Schwartz, S. (2007): “…provides comprehensive information on various methodologies with straightforward delivery, offering the perspective of parents and of children who have grown up since the publication of the first edition. The third edition adds additional communication methods, and also covers in depth the medical causes of hearing loss, the diagnostic process, meeting with the audiologist, and the pros and cons of the newest technology, the cochlear implant. This work guides parents through the choices they must make for their child, covering conditions and treatment from both the parents' and the child's point of view. National organizations serving the deaf or hard of hearing are listed, along with contact information.”

The Young Deaf or Head of Hearing Child: A Family Centered Approach to Early Education. Bodner-Johnson, B. & Sass-Lehrer, M. (2003). “This scholarly resource provides guiding principles and strategies for early intervention professionals working with deaf and hard of hearing infants, toddlers, and preschoolers and their families. The book takes a family-centered approach and supplements its broad research base with concrete suggestions and vignettes illustrating the experiences of early interventionists and parents of deaf and hard of hearing young children. This book discusses language and literacy, family-centered services, legislation and policy considerations, program development and evaluation, and educational strategies for teaching young children who are deaf or hard of hearing.”

Virginia Guidance
The goal of the Virginia Early Hearing Detection and Intervention (EHDI) program is to identify congenital hearing loss in children before three months of age and to assure enrollment in appropriate early intervention services before six months of age. Program services include: Providing information and referral to families, collaborating with birthing centers, primary care providers, and audiologists, and educating the community.
Guide by your Side is a parent‐to‐parent program of Hands & Voices. Screened and trained Family Guides (experienced parents of children who are deaf or hard of hearing) provide emotional support and unbiased information to families of infants and toddlers who are deaf or hard of hearing
The Virginia Hearing Aid Loan Bank (VHALB) is open to children under age 18 who are residents of Virginia and whose hearing loss is confirmed by an audiologist. The bank lends hearing aids and FM systems for up to six months.
Parent materials from the VA state EHDI program (English and Spanish).
Virginia Department for the Deaf and Hard of Hearing works to reduce the communicaOon barriers between persons who are deaf or hard of hearing and those who are hearing, including family members, service providers, and the general public.
The Speech‐Language‐Hearing Association of Virginia (SHAV) is an independent non‐profit professional association representing speech‐language pathologists and audiologists in the Commonwealth of Virginia. Includes list of Virginia resources:
Virginia Department of Education (DOE). Office of Special Education: Information for parents of children who are Deaf, Hard of Hearing, or Deaf‐Blind.

Cochlear Implant programs in Virginia

Virginia Commonwealth University Hearing Center: and

University of Virginia:

Eastern Virginia Medical College:

La Clínica John Tracy provee, a través del mundo y sin costo, servicios para padres y sus hijos pequeños con problemas audiOvos, ofreciéndoles esperanza, orientación y apoyo.
La colección de 200 títulos de material audiovisual educativo en idioma español del Programa Descrito y Subtitulado de los Medios (DCMP).
La Audición de Mi Bebé, un sitio Web, se divide en tres secciones: la audición y la amplificación, el lenguaje y el aprendizaje, y padre a padre.
Información sobre los niños con pérdidas auditivas.
Centro Nacional de Diseminación de Información para Niños con Discapacidades (NICHCY) ‐‐ La Sordera y la Perdida de la Capacidad Auditiva
U.S. Department of Education. (2007). Que se abran las puertas: Opciones de tecnología y comunicación para los niños con pérdida auditiva.

Hear‐It en español sirve como una fuente de información sobre la audición, pérdida de audición y audífonos.
Instituto Nacional de la Sordera y otros Desórdenes Comunicativos.
Centros para el Control y la Prevención de Enfermedades (CDC)

Virginia Early Intervention Professional Development Center

Virginia Commonwealth University
Partnership for People with Disabilities

Integrated Training Collaborative
Infant and Toddler Connection of Virginia
Partnership for People with Disabilities

This professional development activity is supported by the Integrated Training Collaborative (ITC), with funding support from the Virginia Department of Behavioral Health and Developmental Services (DBHDS), American Recovery and Reinvestment Act (ARRA) Copyright © 2011, Updated 2013.